We were planning on going to get his monthly labwork yesterday morning, but it was raining, so I decided to let him sleep.
I went in to change his appliance, and told him I decided to wait until tomorrow because of the rain (need new wiper blades-not in budget) and he said...
"Why? Last I checked you aren't a Wicked Witch, you won't melt from getting wet."
So, there...I am not a Wicked Witch!!
Well, OK, you say,but why is this important enough to blog about?
Well, because life is hard,and my son is starting to regain a bit of his personality after a couple of very,very difficult years.In the midst of stress and worry smiling because my son said something witty is a gift.
He has suffered so much in his illness, and while he is as stable as he will ever be, he has had to relearn much and it is taking a while. So he is worth celebrating.
My son is my hero. He used to meet every day with optimism, and was truly the most content person I have ever known. Things most of us take for granted can be difficult for him,but he has spent his life persevering. Things we take for granted make no sense to him. We are still trying to establish a new normal, and it is hard. So the days he is witty are important.
Even though he has the most amazing sense of humor he really doesn't realize he does.Funny was always hard for him. In middle school he realized he didn't understand the jokes the other kids were telling, and why they were funny. So he checked out joke books from the library and studied the situation.
Because his brain works differently, he doesn't see things the way most do. He can't read body language or facial expression. He is challenged by tone of voice. Having a conversation is not easy for him. He talks to me the easiest when we are in the car. There is a reason for this, when we are in the car, Mom has to pay attention to driving, so I can't ask him for eye contact, or even to look at me.
The truth is, he has every right to whine these days.Yes, his health is stabilized,but still he is not healthy--and won't ever be again.Life is hard for him in ways he really hasn't come to grips with yet.
This person with autism, who can't stand to be touched has to allow his nurse mom to help him with his medical needs dozens of times a day. He has to tolerate what is to him intolerable, and he must be forgiven for the times that makes him cranky and whiny.
So, while life is grim at our house, life still has its moments. Moments where I can see my son returing to me, and even though we are poor, and behind on everything (as usual these days) those moments are the things that life is actually about.
So, happy Spring, I am Not A Wicked Witch!!
P.S. I dislike doing this but there is a paypal button over there,just in case. I told a friend once who was embarrassed about asking for help that if we don't make our needs known how does anyone ever know we have needs.The William and I are struggling,and just as embarrassed I am pointing out the button.We are continually blessed.
I went in to change his appliance, and told him I decided to wait until tomorrow because of the rain (need new wiper blades-not in budget) and he said...
"Why? Last I checked you aren't a Wicked Witch, you won't melt from getting wet."
So, there...I am not a Wicked Witch!!
Well, OK, you say,but why is this important enough to blog about?
Well, because life is hard,and my son is starting to regain a bit of his personality after a couple of very,very difficult years.In the midst of stress and worry smiling because my son said something witty is a gift.
He has suffered so much in his illness, and while he is as stable as he will ever be, he has had to relearn much and it is taking a while. So he is worth celebrating.
My son is my hero. He used to meet every day with optimism, and was truly the most content person I have ever known. Things most of us take for granted can be difficult for him,but he has spent his life persevering. Things we take for granted make no sense to him. We are still trying to establish a new normal, and it is hard. So the days he is witty are important.
Even though he has the most amazing sense of humor he really doesn't realize he does.Funny was always hard for him. In middle school he realized he didn't understand the jokes the other kids were telling, and why they were funny. So he checked out joke books from the library and studied the situation.
Because his brain works differently, he doesn't see things the way most do. He can't read body language or facial expression. He is challenged by tone of voice. Having a conversation is not easy for him. He talks to me the easiest when we are in the car. There is a reason for this, when we are in the car, Mom has to pay attention to driving, so I can't ask him for eye contact, or even to look at me.
The truth is, he has every right to whine these days.Yes, his health is stabilized,but still he is not healthy--and won't ever be again.Life is hard for him in ways he really hasn't come to grips with yet.
This person with autism, who can't stand to be touched has to allow his nurse mom to help him with his medical needs dozens of times a day. He has to tolerate what is to him intolerable, and he must be forgiven for the times that makes him cranky and whiny.
So, while life is grim at our house, life still has its moments. Moments where I can see my son returing to me, and even though we are poor, and behind on everything (as usual these days) those moments are the things that life is actually about.
So, happy Spring, I am Not A Wicked Witch!!
Peace and Blessings,
EB
P.S. I dislike doing this but there is a paypal button over there,just in case. I told a friend once who was embarrassed about asking for help that if we don't make our needs known how does anyone ever know we have needs.The William and I are struggling,and just as embarrassed I am pointing out the button.We are continually blessed.
