One More Year...One Day At A Time

Oh my word, I haven't had a drink in 40 years!

Today is my birthday. Not my belly button birthday, my day I got clean and sober birthday. Today I am celebrating 40 years of sobriety. Celebrating 40 years of choosing to deal with life and all its challenges, obstacles, defeats, and victories without using drugs or alcohol. 

I don't remember when alcohol wasn't available to me. My older brothers-14, 18, and 21 years older than me- were the kind of guys that thought it was cute to give a baby or toddler a sip of beer, or whatever cocktail they might be drinking. There was always a bottle of whiskey in the kitchen cupboard, and when my dad wanted a glass of wine in the evening, he sent one of us to get it.Alone in the kitchen, no one was there to see me take a swig for myself. If there were family gatherings, not much attention was paid attention to what you were grabbing out of the cooler. After all, the men usually sent a kid to get the beer out of the cooler. So I developed an enjoyment of the taste and effect of alcohol at a very young age. It was an easy way to make life stop hurting for a little while. 

Of course,as soon as I left home it was no problem. I looked older than my age, and was never carded. Really, the first time I was carded was on my 21st birthday. There was a new guy at my liquor store, and he carded me and wished me a Happy 21st birthday. The owner was shocked, since he had been selling me alcohol for 4 years. But, he didn't make a big deal about it. I was a very good customer. By the time I was 21, I was drinking every day. I had started down that road as a teenager with undiagnosed bipolar disorder. I was self medicating with drugs and alcohol for several years. When I was diagnosed, I started letting go of the drugs, but consumed more alcohol to make up for it.

I drank my way through college, and 5 years into my working life. I managed to get good grades, and do good work while I increased my drinking. I had good jobs, but my drinking caused me to make some really, really stupid decisions about men and relationships.Just like the song says "Looking for love in all the wrong places."


I knew that eventually I would have to quit drinking. I knew that it was impossible for me to drink in moderation, and I hated that, because there were things I truly enjoyed and did not want to give up.I truly enjoyed choosing the right wine for a good meal. I truly enjoyed a cold beer on a hot afternoon.But, as much as I wish I was, I am not the kind of person who can stop with one glass of wine, one cold beer, one mixed drink. So, I had to listen to the small voice and quit. The last time I got drunk was on a Sunday night. I had been to a party. I don't remember much about the party, I had been drinking all weekend of course, but for some reason I got really drunk at that party. I think that I totally embarrassed myself, and a friend suggested we leave and go somewhere else. We ended up at her Mother's house. I don't remember how we got there, but I do remember sitting at the kitchen table drinking coffee and talking to her mother until 5 o'clock Monday morning. I drove home and got in the shower and then I decided to call in sick and get some sleep. I had never done that before, I always went to work. In fact, I got in the shower intending to get ready for work, but while I was in that shower I started getting quiet, and when I get quiet I can hear the small voice, and the voice said "It's time to heal." 

So, I called in sick, went to bed and slept for a couple of hours. When I woke up I felt like crap.I never got hungover, but that day I was hungover. I spent some time feeling sorry for myself, but then I remembered hearing the voice. I knew that it was time to stop numbing the pain, time to stop dulling the memories and to start healing the wounds. I called my doctor, and went to see her. I had a good talk with her and she referred me to a therapist. She called him right then, and he saw me that afternoon.It was Monday, January 19, 1981. The therapist said that he would work with me, but he also suggested that I go to AA. He got out the phone book, and handed me the phone. I made the call and found a meeting that evening. That was the beginning of my journey to health and wholeness, a journey I am still on. It is not an easy journey to start. It is not an easy journey to continue, but it is a journey I believe we must all undertake.

So, here I am. I haven't had a drink, oh how I have wanted to, but I have not had a drink.My Higher Power and I are taking a journey. One day at a time.


Peace and Blessings,
EstherBelle

Christmas Eve

As my son prepares our traditional DiGiorno pizza for dinner, a Christmas eve wish...


There's nothing sadder in this world than to awake Christmas morning and not be a child.~~Erma Bombeck~~

Now, when you read that do not think, oh dear, that is so right. Think, I am a child. A child of the Creator, and I deserve to believe that I am a beautiful, wonderful, worthwhile individual with so much to offer myself and those I love. The most important things I have to offer have nothing to do with the house being spotless, or the decorations being Martha Stewart worthy, or the Christmas dinner being course after course of delicious. What I have to offer is the heart of a worthwhile person. A heart that knows that I am intelligent, and caring, and worthy of treating myself well. A heart that is able to be a better mother, wife, sister, daughter, friend because I know my value.

Take time today to rest, even though you have things to do. Take some time to get at least a few moments with yourself, and remind yourself that a confident, loving smile is worth more than anything you can possibly accomplish today. Remind yourself that when we wake up on Christmas morning we are all someone's child, and relax and enjoy the day, no matter the circumstances. CHOOSE to believe in yourself, CHOOSE to hear only the truth about yourself from yourself and others, CHOOSE to remember who you are and nothing else can take that wonder away from the day. Relax, refresh your spirit, and wake up Christmas morning with the eyes and heart of a child!


Now why is DiGiorno your Christmas Eve dinner you might ask. Well, it's a tradition.In our family Christmas Eve means that my son is in charge of the kitchen. Not a bad tradition!

 We came up with this tradition because I was a working mother.Well, we all are. My last job,I worked in a huge grocery store. I would finish the midnight shift on the 23rd, and then go back in and work the day shift on the 24th. By the time we closed the store at 6:00 pm, took care of all the customers, and allowed the teammates a few minutes to grab that last item, it was often close to7:00 by the time I got to my car.I would drive home, tired. So, we decided that we would just have pizza for dinner, and if I called home just before I headed to the car, it could go in the oven.  My husband and son would wait for me to call, and by the time I got home, changed my clothes, and sat down in my recliner to put my feet up dinner would be ready and our son would serve Mom and Dad.

I hope that you and those you care about have traditions.Traditions are an important way to bridge the gap between generations, to enlarge your tent and bring new people into the circle of your hearts.Traditions are an important way to share memories, to make memories, and to anticipate new memories the next time you act upon the tradition.Tradition is a way that our families, our friends,our communities can stay connected one to another.Tradition can be the way that we remember what it is to love and to be loved. In our house, a boy who was born blessed by autism did not have the ability to tell us with words that he loved us, but he can bake a pizza.


Peace and Blessings,

EB

Timely Reminder

So, I was wallowing in a pity party last night, and scrolling through twitter when this came on my feed. Now this is not somehthing I do not know,it is just something I tend to forget when I am in the idst of a "pity- party of one" frame of mind.

This is such a difficult time of year, not just for me. I honestly don't know many people, especially women, who don't get frazzled and stressed out this time of year.

First, it's winter and days are short and some of us don't function well when it is dark all the time. (why yes, I am one of those, it makes me cranky, what?)

Then it is the holidays. We think everyone else is handling the extra stress of the holidays better than us...and why are the holidays so damn stressful anyway.

We get so busy this time of year. Whether we are rich or poor, young or old, we get stressed out around the holidays. If you are having financial problems-like we do at our house, you worry, and stress out about how you will keep the electricity on, and still manage to provide a semblance of cheer. It's really hard to think you won't be able to buy a gift for your chid. Really hard. 

 

 If you are lucky enough to  have money, you still worry.

 

So much to do,so little time...

We are bombarded by images, Martha Stewart worthy decorations.Chef worthy dinners, delectable desserts, 6 kinds of cookies.Norman Rockwell family images. And we start to believe that we are the only ones frazzled, stressed, frightened becasue obviously everyone else is better at this that we are.

Sometimes, in the midst of all of this we feel totally useless. As if we have nothing to offer. Everyone else is better at al of this. Or maybe that is just me (but I don't really think so) There are very few things in life that I use the word hate for, but one of the things I do use it for is this. I HATE feeling useless.

That is why this lovely tweet was so timely for me. I needed the reminder.

I think people have this skewed vision of what life used to be-too many Norman Rockwell magazine covers. Norman Rockwell was an artist not an historian.

Honestly, people weren't all that much different 50, 60, 100 years ago. There were good people, there were not so good people. It wasn't a Norman Rockwell magazine cover or an episode of Leave it To Beaver. Just like now, so many things depend on your economic status. Poor women worked outside the home-often in the homes of women with more resources. Poor people spent there limited resources trying to keep a roof over their head and feed their families. 

The world does not cease to exist if we bake 2 kinds of cookies instead of 6. The world does not cease to turn on its axis if we cease to run around frenetically, the sun still,even if belatedly, comes up in the morning. If we choose to not spend money we don't have this year, no one will hate us because their present is smaller (well, if they do they don't count anyway!)Besides, the small ones play with the boxes longer than the presents! The older ones will understand if we are being honest, authentic in our lives.So yes, let's remember to slow down, to breathe. When we get all caught up in the frenzy we miss so much.

So, I appreciate the reminder.

Value and worth are inherent. None of us are useless, not even me.

So, I will take a breath, appreciate the reminder and keep doing what I can,as we start the countdown to the end of the year remeber...All you can do is all you can do.

Peaceand Blessings,

EB


P.S. I dislike doing this but there is a paypal button over there,just in case. The William and I are struggling,and  embarassed I am pointing out the button.We are continually blessed.

Stories of my Father

Today is my father's birthday. he was born 115 years ago. A different time. 

He was a simple man, born in a different time. He did the best he knew how to do when he was raising us. Many things he did were wrong, but he thought he was doing the right thing, doing the best he could, and so as I matured it was easy to forgive him.


I loved my father.He was a good man and many people admired and cared about him. He would say he was a simple farmboy from Missouri, but he was more than that.He had been a muleskinner before he joined the army. Here in Kansas City he would shoe horses and mules, and he kept that occupation in the army. He had a long ugly scar on his shin that he got when a mule that he was putting ice shoes on kicked him. The ice shoes were for working the mules on the frozen Missouri river. He had left school after 8th grade to help support his family. He was the oldest of 8 children, and he took his role as oldest seriously. When my grandfather became ill my father helped take care of them by going to work.He had an amazing, strong work ethic. When work became hard to find in the 1920's he joined the army.

Towards the end of his stint in the army he was based in Southern California. A few months before his discharge he met my mother. He always told the story of how they met and why they married. My mother was a waitress in a diner that was owned by a married couple. My father was a bit of a rogue, a rake in those days and had been seeing the married woman. Then he met my mother and asked her out and she said no. So, he stopped seeing the married woman and asked my mother out again. She went out with him, to the car races on a Sunday afternoon. The next day, when her married boss found out that she had gone out with my father, my mother was fired.My father always said he married her because he had made her lose her job.

Even though my father was very stern and reserved with me, I do still have some very good memories of him.

This one starts out hard, but ends up with a great line...
I had to pretty much run away from home to go to college. My father forbid me going, and I ended up living at home a couple of years until I turned 18 and could leave on my own.My mother understood it was something I had to do, and I think that is because she couldn't afford to go to college when she graduated from high school in 1930. So, I turn 18, and I am on my way to the bus station to head to college. The last thing I hear my father say to my mother is that "Nothing good will come of this, she'll go off and come back pregnant." He had such faith in me! So of I went to college, majored in theatre, ended up working in theatre and radio, won awards in both careers. My father saw me on stage one time, and heard me on the radio once. A few years later, when their health was failing, Papa had congestive heart failure, emphysema,and Alzheimer's. Hard to believe, this was a man who retired from a roofing company at 65, and went back to work at the roofing company at 67, and the young guys couldn't keep up with him. He fell off a roof when he was 73, around Halloween. He broke his hip and had surgery to implant screws and a rod the first of November. Doctors said he would take 8 months to a year to walk again. On January 1st, we were watching the news and there was a fire at the company where he had worked for 50 years. He said "They're going to need everyone and went back to work on January 2nd. He worked for several more years, until the Alzheimer's got bad enough that he couldn't work anymore.But I digress...when his health was getting worse and he and mother couldn't manage on their own anymore, I left my career in radio and back to California to take care of them. I did not know at that time that I was pregnant. After I had been there a couple of months it became obvious I should see a doctor, and I was shocked to learn that I was expecting. Remember what my father said when I left for college? Well here it was decades later,I was an award winning actress, designer,and broadcast news director, afraid to tell my father that I was pregnant because I was his old maid daughter. So, I call my little sister (two years younger than me) who was a married mother of two. My sister tells my mother, and my mother goes in to tell my father while I sit on the porch. It is late summer, and the windows are open and I can hear my mother telling my father what the doctor had said and the next thing I hear is my father's voice..."I told you if we let her go off to college this would happen, she came home pregnant."

Did you notice that I was his old maid daughter? This is one of my favorite stories. I was working at a theatre on my 25th birthday. We didn't have a phone back in the costume shop, so if there was a call someone would have to come get us. So it is the afternoon of my 25th birthday, here comes the office girl who says "You have a phone call, it's you're father." My father? My father never calls. He always has my mother call, even his favorite sister. He will talk on the phone  but he never makes the call. Assuming the worst, that something is wrong with Mother I run to the office to answer. I pick up the phone and say hello. My father says hello, and I ask him if everything is OK. Is something wrong with mother? Here is the rest of the conversation...

"No, your mother is fine, I wanted to talk to you."

"Is everything OK?"

"Do you know what today is?" 

"Yes, sir, it's my birthday."

"Do you know how old you are?"

"Yes, sir, I am 25."

"What did you do last night?"

"We had a show, I worked."

"What are you doing tonight?"

"We have a  show Papa, I am working."

"Did you get married since the last time we talked to you?"

"No, sir, you know I didn't."

"Are you sure? Do you have plans to get married tonight?"

"Yes, sir.I am sure.No, sir, no plans to get married."

"Do you know what it means when a  girl turns 25 and she's not married?"

"No, sir, I don't."

"It means you are an old maid.If you turn 25 and you're not married you are an old maid. there has never been an old maid in my family.I'll be the first one to have an old maid daughter.Do you know what happens when you turn 35 and you're not married?"

[By this time I am laughing]
 "No, sir, I don't know."

"If you turn 35 and you're not married,and it doesn't look like you're going to be,at 35 you become the little old lady who lives on the corner."

[I am really laughing now]
"Papa, I am 6'1" and weigh over 300 pounds, I hardly think I will be a LITTLE old lady."

"It doesn't matter, at 35 you become the little old lady who lives on the corner. I won't be able to hold my head up in my family."

And then he hung up. I am not sure to this day whether he was serious, but once again I did not disappoint my father. I was 47 when I married. I wish he had still been alive to come!

Here's the last one I will share today. I only talked back to my father twice in my life. The first time was when I was 13, and it was the last time he whooped me with the leather strap. It had to do with me sassing my mom, and that was NOT allowed. The second time, I was 22. It was the night before my sister's wedding. For reasons that don't really matter anymore, my father had decided he was not going to the wedding. My sister was hurt. Some in the family thought he didn't want to get dressed up. He wore bib overalls every day of his life. I only saw him dressed up in slacks and jacket one time. But my sister didn't care if he came in his overalls, she just wanted him to come. One of our older brothers would be walking her down the aisle because of my father's stubborn stand.So, since we are all busy getting ready for the wedding, it is decided that we would go pick up some take-out food. I ask my father to go with me, and he does. While waiting I get my nerve up and I say to him "I am going to say this and you can whip me if you want, but you are going to that wedding." "No, I'm not," he answers. "Yes, old man," I say, "you are going to that wedding if I have to knock you out and take you there myself." Nothing more was said, the food came and we took it home. We all went to the wedding the next day, and left him at home. We got dressed, and the music started.As the maid of honor I start down the aisle just before my sister, and there in the last pew, sitting on the aisle, was an old man in bib overalls. I looked him in the eye and smiled. He did not smile back. My sister, who had not cried yet that day started crying when she saw him. So, later as I drove him and mother home from the reception,a reception where he had a great time and maybe got a little tipsy, he said to me "you were right, but don't you ever talk to me that way again."  I never spoke back to him again.

The morning he died, his mind was amazingly clear. I had him up and bathed and dressed in his beloved overalls. he was playing with my son, who was about a year old. Papa told my son he loved him, then looked at me and said "He's going to grow up to be a fine young man, I wish I was going to be around to see it."

I treasure those words, and I miss my father, and I wish he were here to see that his words are true. My son is an amazing young man, and I tell him the stories of my father.

So, today, I will honor them both by telling  stories, our stories.

Please, if you know someone who is grieving or struggling, let them honor their loved ones by telling the stories. I believe you will be blessed.


Peace and Blessings,

EB




P.S. I dislike doing this but there is a paypal button over there,just in case. I told a friend once who was embarrassed about asking for help that if we don't make our needs known how does anyone ever know we have needs.The William and I are struggling,and just as embarrassed I am pointing out the button.We are continually blessed.

The Kindness of Strangers

And God  
said "Let there be heat..."


Well,not exactly God,it was actually Wendy  from the gas company...but I cried anyway.


A little back story...

We're poor.We juggle and struggle with keeping the  bills paid,and this summer they turned the gas off,major annoyance, but the air conditioning was more important,so we heated water on the stove and struggled on.

And then the electric company got crazy...but that's another story..suffice it to say we couldn't manage the money to get the gas turned back on.

And the calendar pages kept turning,and the season changing.We were getting to the time of year when heat is important,and still we struggled.

I have made myself sick stressing about it.If I don't pay the electric bill and eat ramen,I can still only come up wit about two thirds of the money to get it turned back on.

Then on Monday I got a notification that some had used the PayPal button on my blog...and it was the final third of the amount.

Now,someone I had never met had us on their heart,and it was the amount that made it possible to turn the gas back on.

The  appointment was made.As the week went on it ho

got colder every day.

The appointment window was 12-2,and by the time the lovely Wendy got here it ,1:50,I was stressed to the max. True story...just as she got here IT STARTED SNOWING!!

Thirty minutes later,the lovely Wendy said "Let there be heat..." And there was,and I cried.

One problem down!!

Of course,nothing is easy,and naturally something else went wrong this week.The 5 year old Chromebook laptop finally died yesterday.The electric bill didn't get paid,the grocery budget no longer exists.

But those are miracles for another day. As my son would say,remind the universe we have PayPal.

But for today,we continue to be blessed by the kindness of strangers and We Have Heat!!

Peace and Blessings,
EB

Into The Darkness

I hate to whine,but I am not a fan of winter. The time change this past weekend has thrown me off.Now 5:00 in the afternoon feels like the middle of the night. 

 I think it is just a stressful time of year. We have entered the 'holiday' season. Since time began, humans have had celebrations during the winter season, and for good reason. When the winter is upon us, we sometimes need to be reminded that it will not always be dark and the light will return.

So here we are, just a couple of weeks from Thanksgiving, and we are already starting to see people running around getting stressed out and being rude and unkind to each other. It is not easy to remain calm when someone is rude, but if we are to reclaim civility and peace for our society, we have to start by reclaiming it in our own lives.

The holidays are hard for us sometimes, in that the reality often doesn't match up with our expectations. We want so much to create either the holidays of our memory or the holidays of Norman Rockwell's imagination. For those of us who don't have halcyon memories to draw on, we think we will make up for it by making sure our loved ones do. For those of us with great memories we compete with trying to accomplish all of those things in a different time. And so we are worn out, frazzled, frustrated.

I think the first place to start to reclaim some peace and tranquility at this time of year is to acknowledge that the Norman Rockwell holiday was a figment of Rockwell's imagination. I love Rockwell's work, but honestly those illustrations were just that- illustrations. Yes, I am sure that there are families and celebrations that look like that, but I am also sure that there are families that don't. So I think we have to allow ourselves to relax and to create what works for us. No more 'keeping up with the Joneses'!

Now my maiden name was Jones, so I have always found the thought of 'keeping up with the Joneses' absurd. Believe me, we weren't worth keeping up with. Holiday dinners at our house were fraught with difficulty.When all of the siblings and their families got together there were bound to be arguments, fights, and just general mayhem. I don't remember a time when everyone was speaking to each other, there was always some point of contention somewhere. One of the memories I laugh at was the year Thanksgiving dinner was at the home of one of my brothers instead of my parents. That brothers wife did not care for me (her loss) and she very cleverly made that known! I happen to have food allergies,in particular coconut and walnuts. On that table there was not one dish that did not include coconut or walnuts. NOT ONE! From the salads to the stuffing to the gravy, some form of coconut or walnut had been included in every recipe. Then she whined because I excused myself from the table without eating anything. My brother yelled at me that I was disrespecting his wife, and as I left the room my family started arguing. Just another family gathering at the Joneses!

So, as we start the countdown to the end of the year, my advice is to relax. All you can do is all you can do. Perhaps it is time to simplify anyway. As we encounter rude people who are stressing out, smile, perhaps say a little prayer that they will be blessed, and remain calm. That guy that just cut you off on the freeway, ask God to bless his life and keep him safe. That cranky neighbor, ask God to pour out blessing on her. That frazzled cashier, thank her for working hard and wish her a blessed day. Whatever you do, do not repay rudeness with rudeness. You only make yourself unhappy when you do that, and the truth is rude people are unhappy people, no need to add to their numbers.

Do yourself  a favor. Relax,enjoy. Do someone else a favor. Visit someone who doesn't get visitors very often.There are a lot of folks who are struggling--believe me, I know. As much as financial help is necessary--and appreciated--human contact is also a struggle.

This time of year is a natural time for remembering, the winter season is a time for reflection and renewal. Today, with the solstice upon us, we are reminded that there is a reason why most cultures, from our prehistoric ancestors until the present time have holy days and ceremonies at this time of year. The nights are long, and life has slowed down as the earth sleeps and rests for the growing that will come. We as human beings have always seemed to be more spiritual at this time of year. We have time to reflect, and time to share the stories of our lives and the lives of those who have come before us.We have time to be social, and so we honor this season with ritual, tradition, and ceremony.We have time to tell our stories.

As you go through this season, no matter your traditions, I hope that you will find time to share someone's stories. Take a few minutes to connect with a friend who is grieving, or an older relative, and just give them to opportunity to remember.If they cry, all that is needed is your hand on theirs. If they laugh, your laughter will naturally come to mingle.It may be the greatest gift they receive this year.
Peaceand Blessings,

EB


P.S. I dislike doing this but there is a paypal button over there,just in case. I told a friend once who was embarassed about asking forhelp that if wedon'tmakeour needs known how does anyone ever know wehaveneeds.The William and I are struggling,and just as embarassed I am pointing out the button.We are continually blessed.

 

November is RSD/CRPS awareness month

Awareness months seem commonplace these days, and so it can be easy to ignore them. Then of course, something hits home with you in a personal way, and you feel the need to be part of the awareness. As the parent of a young man with autism, I have written about autism awareness. This month, I am writing as a person with RSD.

What is RSD/CRPS you ask? Well, according to the National Organization of Rare Disorders "Reflex sympathetic dystrophy syndrome (RSDS), also known as complex regional pain syndrome(CRPS), is a rare disorder of the sympathetic nervous system that is characterized by chronic, severe pain. The sympathetic nervous system is that part of the autonomic nervous system that regulates involuntary functions of the body such as increasing heart rate, constricting blood vessels, and increasing blood pressure. Excessive or abnormal responses of portions of the sympathetic nervous system are thought to be responsible for the pain associated with reflex sympathetic dystrophy syndrome."

Now, this post is not to seek sympathy, but to increase awareness. So many live with what are sometimes called invisible diseases. It can be difficult for those who love us to come to terms with the fact that we are in pain. My late husband hated my pain more than I did. He felt completely helpless, not an easy thing for a loving spouse to feel. The first few years-I experienced my first symptoms in 2001 on our honeymoon-I felt a lot of guilt. Yes, guilt. It isn't easy knowing that family times and plans depend on how Mom is feeling that day.

It took a year before I found the doctors I rely on. Rare disorders are like that. Most doctors have limited knowledge of the disorder and even less knowledge of how to deal with it. I was misdiagnosed by several doctors. Really unfortunate because if diagnosed early there is a chance to stop the progression. I was progressed into phase 3 of 4 before I found the right doctors.Still, I was not finished with unknowing medical professionals. After I found my wonderful neurologist, who not only knew what was wrong with me, but knew how to help me, I had to change my primary care  physician. The one I had been using quite simply looked at the diagnosis from the neurologist and told me there was no such thing as RSD and that I was imagining it.

Now, RSD has been in the medical literature for 150 years. The name has changed through the years, in fact the name has changed since I developed it in 2001, but it has been written about since the Civil War. So, you can imagine how disheartening it was for a physician I trusted to look me in the eye and tell me I was imagining the most excruciating pain known to exist. He simply refused to continue treating me if I persisted in seeing my neurologist for treatment of the RSD. For me, this is underscores why  we need to have an RSD/CRPS awareness month.Even doctors need to be educated.

Twenty five years ago when I first started seeking answers for what was different about my son, it became obvious that educating people was going to be part of the equation. I had never met anyone dealing with autism, and so I found myself researching and studying so that I could educate family, friends, even the doctors and educators we were dealing with. Fast forward,and I am find the same need to educate when it comes to RSD. Luckily, we now have more avenues open to research, share information and connect with others doing the same thing. All too often when you are dealing with something you can feel isolated, as if you are the only person in the world who has to go through what you are going through. In this day of social networks and awareness months it is so good to know that there are others out there who understand.

While no two people have exactly the same experiences, it is always helpful to know that you are not alone. This disorder is not easy to live with. There is no cure, and as horrific as enduring the physical pain can be, the psychological and spiritual pain can be even worse. It is not easy being in pain, being treated badly by the medical establishment,misunderstood by friends and family, needing large doses of narcotics just to get through the day. It will wear you out. It isn't even easy to describe the pain you are feeling.OK, imagine that someone has set your nervous system on fire, is applying a cattle prod and attempting to shred the flesh from your bones with a giant meat fork, all at the same time. I told you it was hard to describe the pain that an RSD patient endures. NOW multiply what you imagine that might feel like by about 10,000.You might be getting an idea of the severity of the pain. Honestly, that is the best picture I can give you. Now imagine that the pain that is constant at about a 6-7 out of 10 can be spiked up to about a 12 out of 10 (I am not exaggerating) simply because the fabric of the skirt you are wearing was touched by a puff of wind. The pain colors every moment of your life. Every breath you take. Am I enjoying a sunset on my deck? What if the wind comes up, what if the fabric in this skirt is scratchy, what if I simply breathe deep and the pain flares? You have to think about these things,and learn to deal with them.

Of course, RSD is not the only disease/disorder that involves chronic pain, there are way too many. It just happens to be one of the diseases I have. There are an estimated 5 million people worldwide suffering from RSD.The reason I talk about RSD is so that other people can be encouraged to talk about what they are dealing with. It is my small way of saying that you can learn to manage your pain, and perhaps even to manage to have a life in spite of it.

You can learn to manage the pain with medication, good doctors, and with the meditation and breathing that you use for so many things.Some days you might be stuck in poor pitiful me mode, and that is OK.Life is hard and pain just multiplies the hard some days.

BUT, you are not alone.Even people who can't imagine the pain can sharetheir energies with  you...but you have to share your story so they will know you need them.

Peace and Blessings,

EB


p.s. I dislike doing this but there is a paypal button over there, just in case. I told a friend who was embarrassed about asking for help that if we don't make our needs known how does anyone ever know we have needs.Right now our needs include getting the gas turned back on. So, just as embarrassed, I am pointing out the button. Blessings.