My Hero

I had an interesting conversation with my son today.My son is a person with autism. He is 26 years old. I started questioning his pediatrician when he was just a little more than a year old.We visited our first so-called expert when he was 18 months old. Much has changed since then, thankfully. Those first 'experts' were so wrong about so many things.

My son is my hero. He meets every day with optimism, and is truly the most content person I have ever known. Things most of us take for granted can be difficult for him,but perseveres and learns how to deal with any challenge.

Having a conversation is not easy for him. He talks to me the easiest when we are in the car. There is a reason for this, when we are in the car, Mom has to pay attention to driving, so I can't ask him for eye contact, or even to look at me. Because his brain works differently, he doesn't see things the way most do. He can't read body language or facial expression. He is challenged by tone of voice. Today, it dawned on me that that also describes those of us who communicate with others on the computer. When we read a post on facebook, or a message board, we can only read the words. We can't read body language, or facial expression. We can't hear the tone of voice.

So, back to the conversation I had with my son. We were discussing a commercial we had seen while watching some NASCAR programming. In the commercial, a driver mentions that the rate of autism in our children is now 1 in 110. When my son was diagnosed nearly 25 years ago it was thought the rate was 1 in 10,000. So our conversation was centered on not only the need for awareness campaigns, but on the increase in numbers of persons with autism.

I guess I need to point out that we have always considered my sons autism as a blessing. We accept that his brain works differently, and that that difference is not bad, it is just different. I am often astounded at the way he thinks. I was told I was "an unrealistic" parent by certain experts because I said that if we can figure out how the autistic brain works we would find the answers to most of the worlds problems. I thought that when my son was a toddler, I totally believe it now that he is a young man.

When we talked, my son said awareness is necessary so that more people can see that different is just different, not wrong, or bad. Just different.People need to see that there is nothing to be afraid of when someone is different,and that being different doesn't make you less of a person. We also talked about how awareness campaigns might help those who aren't blessed with autism to be more patient with some who are.

Then we talked about how many more people are being born blessed with autism. That is when I was reminded that the answers to our problems might just be in those autistic brains. "What if," he said, "there are more people with autism because the world needs the way we think. What if our brains are evolving to help."

What if, indeed! In a world where more and more communication takes place on the computer. More and more communication takes place where we are unable to read body language, facial expressions, and tone of voice. In a world where in my lifetime technology has evolved more than I can even comprehend some days, what if more people are being born with brains that function differently because we need them.  I was definitely given something to think about, and that is only one of the reasons he is my hero!

I need One

I am still not functioning very well due to the lingering effects of the shingles. When you have a chronic medical condition, especially a chronic pain medical condition, you have a finite amount of energy. You spend most of that energy dealing with the pain, and the rest of it dealing with everyday necessities of life. So, something as simple as a common cold, or as difficult as the shingles, can wreak havoc with your body, because there simply are no reserves of energy to deal with it.So things like writing a blog tend to not happen, even though you have the best of intentions. Then, the next thing you know you are feeling pretty damn sorry for yourself, and more things in your life get left by the wayside. It is all too easy to start thinking that no one else has things as bad as you-which you know is a crock-but it feels like it some days. Then you start withdrawing into yourself, because honestly who wants to be around someone as miserable as you.


Dang, we tell ourselves some stupid stuff!!! (maybe it's just me that does that)


Truth is we need people, and there are more than likely people in our lives that are missing us.People in our lives that think we are pretty cool.


Call it a clan, call it a network, call it a tribe, call it a family. Whatever you call it, whoever you are, you need one.~~Jane Howard~~


We need others. We may at one time or other stick our noses in the air and sniff "That's OK, I don't need anyone else." But it's a lie, we know it's a lie when we say it, we only say it so that some other person is not allowed to see how badly they are hurting us by leaving us or rejecting us. But, the truth is we need others. We need some people just for a season, and that is OK. They may move into our lives and move out again. But we need others, because we have a need to be loved, but more importantly I think, we have a need to love. Hopefully, we will learn that we have to start by loving ourselves, taking care of ourselves, learning and living the truth about ourselves. This enables us to surround ourself with the right others. When we are operating under the untruths that get stuck in our head, we often surround ourself with the WRONG others, so instead of being strengthened, encouraged, loved, we end up depleted, despairing, and destroyed. When we choose to love ourselves we will create a tribe, a group of others who have our greater good at heart. But when we are choosing to operate outside of love for ourself, we can surround us with toxic, discouraging others.Sometimes, we are that toxic discouraging other,and we need our tribe, clan, friends to help us remember our truths and to love ourselves again.

One More Day

Well, today snuck up on me. How can a year have passed since I posted this
http://eb-thefatladythinks.blogspot.com/2011/01/january-19-1981-january-19-2011.html ?

What a year it has been, my 30th year of sobriety. Today marks my 31st anniversary of the day I chose to get sober. I have to say the last few months have been the most difficult in those 31 years, and that is saying something as my life has very rarely been without difficulty. But, even as I have battled my demons- stress, addiction, depression, illness, etc.- the last few months, I have continued to work on my sobriety.


There have been many times lately when I said to myself out loud "Damn, I need a drink." Fortunately my next thought has been "Stop it, you don't drink."  I am not ashamed  to admit that that next thouhgt comes slowly some days. Sobriety really is one day at a time. For me it is one moment at a time most days.

Why 'One day at a time'?

The best thing about the future is that it comes only one day at a time.~~Abraham Lincoln~~

For me that means I need to concentrate on living in the moment. Being present and living in the moment helps to keep me focused on the task at hand. When we live in the moment, one day at a time, we don't have time to become mired in regrets and worries over what happened and how we SHOULD have done. No guilt, no condemnation.Which is not to say that if we hurt someone we should not make amends. It is to say that if we live in the present, the past can no longer hurt us. We can let it go, forgive ourselves and others, and choose to live  for today.Living in the present means that we no longer have to constantly review the past, trying to explain our actions or the actions of others. No more guilt or blaming. Living in the present means that we do not have to worry, assume, obsess about what may happen in the future. If we do that we sometimes project unwarranted negative outcomes to things, when all we really have to do is deal with the outcomes of our actions today, this day.

So, today, this day I will celebrate one more day of sobriety. One more day of hangin' in there, no matter how difficult life has become.

Easy? No, I don't think it is ever easy, but just because a thing is hard to do doesn't make it any less worthwhile.  

Women and Obesity and a New Year

My dear friend Colin posted a photo on facebook this morning that he considered disturbing in its implications and got my mind going...



When I was growing up it was unusual for someone to be as overweight as me. I was an anomaly. As American society moved towards the obesity epidemic we had to go through the late sixties and early seventies, where thinness became the societal norm for beauty. Caucasian thinness, stick thin anorexic models such as Twiggy came to represent the ideal for beauty in our culture. We moved away from normal women, Marilyn Monroe, Rita Hayworth, Mamie Van Doren, women with curves, and in doing so we spawned eating disorders in our young women. In the middle part of the century only women of wealth could achieve the desired beauty, and they did so at the expense of their health. Anorexia became a disease for the masses instead of just for the F.Scott Fitzgerald neighborhood. As we moved through the late part of the century we were becoming obese because of changes in the agrarian nature of our society, HFCS and unhealthy convenience foods became more prevalent. Every one started eating like poor people, who had often been overweight because fresh fruit and vegetables were unavailable to urban poor. Cheap carbohydrates, hormone laced meat products, these became more widely available.  The culture started getting fat. A whole generation of women became what I had been all my life, obese. But they became obese in a culture that adored thinness, they hate themselves. So now we add self esteem issues to the obvious health issues of heart disease, diabetes, etc. We have a generation that is getting fatter while hating themselves for it.Such a difficult road to travel, our bodies resist starvation. But, hating our bodies while not able to attain the so called beauty standard brought a generation of women for whom Prozac and Zoloft became the norm, widely available to the masses, where before we had upper and upper middle class women abusing valium. Self esteem issues that helped turn normal women into morbidly obese women while they used the most widely available mood altering drug-food- to try to feel better about themselves. Vicious circle created.

So, now we have a diet industry, and a generation of women who hate themselves so much that they can not grasp the theory that they need to take care of themselves, physically, emotionally, spiritually, before they can take care of others. Generations of women grasping at every fad diet that comes by, when the truth is it is never about 'dieting', it is about learning to eat well, giving food its proper place in our lives.  Food became lover, friend, mother, father, giving us pleasure that should have been derived elsewhere. We learned to hate ourselves. Learned to not value our contributions because we looked different than the standards of beauty. White, upper middle class standards applied to the rest of us. Standards that we never should have aspired to reach. As the words of the song from the musical Oklahoma, 'round and pink and pretty', should have been what we strived for. Women are meant to be full bodied, for work, and childbirth, for the survival of the species. The estrogen that makes us feminine is created and stored in our fat cells. The cultural norm of thinness makes us less feminine, and as we strive for liberation as feminists we enslave our bodies in reaching for a mythical standard of beauty.So how do we stop the vicious circle? How do we keep from enslaving the next generation in the endless cycle of hating our bodies? I think we start by learning to love our selves right here, right now, and what better time than the beginning of a New Year!

Let this New Year be the beginning of a new life in each of us wherein"old things are passed away." Let all blessed old things stay, but let the clutter of our heads and hearts be removed, that new inspirations and new affections may come in to gladden our lives.~~Chester Burg Emerson~~

It's the New Year.Here we are. The entire culture is health obsessed for the next few weeks. All of the grocery store have 'healthy' foods on sale, the TV is plastered with ads for this and that crazy weight loss product. Everyone is motivated. As the weeks go by, and the quick fixes are just too hard to keep up, or the same old issues keep rearing their ugly heads, that motivation will slip away, and it will be back to business as usual. Except for those of us fortunate enough to have figured out that it is not about a quick fix, or the newest fad diet. It is never about not eating. It is about making the best choices we can make at any given moment, learning to find the old issues and deal with them, so that we can kick them to the curb and get on with the business of learning that we are indeed beautiful, wonderful, intelligent, articulate, deserving, worthy individuals.

We are deserving of the best that life has to offer. So in order to achieve that we will let those old negative thoughts and untruths hat clutter up our minds be the "old things that are passed away." They aren't worth keeping around, they are ugly non productive lies that were told to us by others our ourselves so often that we began to believe them and live them. Just as a child will live up to expectations or down to expectations, so will we. So we must get rid of that junk cluttering up our minds, and replace the old things with blessed new things. The TRUTH of who we are and what we can accomplish when we realize that it is our choice to accomplish it. New inspirations, new affections, affection for ourselves. Loving ourselves enough to know that when we take care of ourselves we take care of the others in our lives better. Loving ourselves enough to only let true things hang out in our memory, and to make the best choices we can in any circumstance. To know that the choice we make may not always be the best, and to forgive ourselves for those times and to make the best choice in the very next moment. So bring on the New Year, we are ready to meet it, ready to do the work we have to do to make it the best year ever. Choosing to let our choices be the things that gladden our hearts.

Do Me a Favor...

...actually, do yourself a favor. Tomorrow night is a night when so many will be out celebrating the end of the 2011 and the beginning of 2012. Please, make a plan. If you drink, don't drive! If you drive, don't drink! Not complicated. But it does require some thinking ahead. It requires you to think about using an alternate form of transportation such as a taxi, or using a designated driver, or being a designated driver. It might mean that you provide a place for your guests to stay, or that you provide a driver. There are many ways to be responsible.

Now I have nothing against enjoying yourself. I have nothing against those who choose to enjoy alcohol. Personally, I will be celebrating 31 years of sobriety in a few weeks, but that is because I am an alcoholic. I do not begrudge you one sip. But I do want you to think ahead and plan accordingly.

If you drink, please do not drive. I don't care how much you drink, one drink or several. Drinking and driving do not mix.

Lives are changed, destroyed in the blink of an eye. When my husband was killed by a drunk driver not only was my family destroyed but the family of the young woman who killed him was changed forever.

I know, most people think this can't happen to me. The young woman who killed my husband did not think she was impaired when she got on the freeway going the wrong direction and hit him head on at 60 miles per hour.

So, celebrate.Enjoy the party! Have a great time, but have a plan in place. Please.

If you drink do not drive!!

Struggles...we all have them

My life is a mess right now. I am in the midst of very trying times. Lost my home to foreclosure, dealing with illness-including these miserable shingles-moving, financial problems, deep dark depression, if it weren't for bad luck, etc. So I have to remind myself of some things. Our lives are lived half in light and half in dark. In Hebrew scripture God assures us in Isaiah(45: 6-7)...

I am the Lord, and there is none else: I form the light, and create darkness, I make peace, and create evil: I the Lord do all these things.

This scripture helped me to understand that those times when I am  experiencing the feelings that I compare to the dark night of the soul, those times were created for my good by Most High God. Now, how can feeling separate from my Creator be for my good? Because it is in those times that I truly have to believe that I would seek my Creator even when I am not feeling like  Most High is there. The times when my prayer life seems devoid and dried up, I can continue in my prayer life, because I know that God exists no matter how I feel. 

In the New Testament sacred literature it seems to me that the followers of Christ were the only one's who doubted. The Romans, the Sanhedrin, the enemies, they knew that here was someone who was going to change everything. But, just as Thomas became forever called doubting Thomas, the followers of the Christ had questions. They were right there with him, they heard what he was saying, they saw the miracles,and yet, we see time and again them questioning and the Christ explaining. If questioning continues even in darkness, the answers must come,though I don't have them right now. So, as darkness must turn into daybreak, waiting on the Most High God must be able to survive the darkness. Sometimes it is just the natural progression of light (activity) and darkness (rest or passive)that is normal in everything.

In Dark Night of the Soul (which is a poem and a treatise on the meaning of the poem) St John talks about the darkness as stripping away the ego. In psychoanalytic jargon the ego is that part of us, the self,serves as the organized conscious mediator between the person and reality especially by functioning both in the perception of and adaptation to reality.So John of the Cross would say that 'greater is the darkness wherein the soul journeys and the more completely is it voided of its natural operations, the greater is its security'. In other words, the more of self we are stripped of, the more secure we are in the fact that God is out there.That the planet will turn and the light will follow, and growth will have happened as the natural progression of times of activity and rest.

None of us follow the same path in our spiritual growth. Many of us experience many different traditions in our journey. We are asking questions, looking for answers. The Christ said in the Sermon on the Mount, everyone that asks receives. The word used for receive has the meaning of gaining. So those who question gain. Those who can embrace the dark as times of rest and growth can relax and know that the questions that inevitably arise in these times will be answered. So while I am struggling,I have to hang on, continuing to question.

Up On The Housetop...

...this is not going where you think it is. Yeah, I know, this time of year those words will automatically cause you to start humming, and trying to remember the words to the song you learned  back on the playground. But, as lovely as that memory is, and you may well thank me abut the 2000th time it runs through your head today, this is about an entirely different subject.

Up on the housetop, your dwelling is covered by a variety of building materials. There are several different types of roofing materials available. This story will use the name of one of the most prevalent types, but it's not about your roof either. (it's my blog, poetic license, and I am in a mood).Not that I am not qualified to discuss roofing materials, I am the daughter of a roofer. A man that worked for the same Roofing and Building Materials company for over 50 years. A man who fell from our roof on October 31, broke his hip, had surgery, and returned to work on January 2nd, at the age of 82. I grew up schlepping buckets, rolls, bundles, believe me I am qualified to talk about roofing materials.

But, I digress. I do that more often these days.

Today I do indeed want to talk about shingles. But, not the shingles that go up on the housetop...I was just attempting a bit of humor, jocularity as it were. Take my word for it, I can use all of the levity I can find these days. No, today I am writing about the disease commonly referred to as  shingles. Herpes zoster, from the varicella zoster virus that gave me a lovely case of chickenpox when I was in the first grade. By the way, my little sister and I had may have been considered overachievers, as it turned out we had the measles and the chickenpox at the very same time. But, as children do, we recovered, which was no easy feat as those illnesses require different types of treatment!

So, this virus gives you a mild childhood illness-or you acquire it through vaccination- then it hunkers down in your body and hibernates for, oh, let's say 50-60 years and attacks you with a vengeance. What the heck is up with that? One more question for my list!! Now I am no stranger to adversity, no stranger to medical problems, I am a cancer survivor-3 times, 28 years cancer free now- I broke my back in a car wreck, I have a neurological disease that is the most painful disease known to man, but I am not ashamed to admit that shingles has whooped by butt! I have never been as sick as I have been over the last couple of weeks. I will not bore you with the details, suffice it to say that since my head and face are home to the problem there are photos and I think those who make Zombie movies will be interested in buying them.

I will share that I have learned that there is a shingles vaccine. I honestly did not know that. It is recommended for those 60 and older, which may be why no one had mentioned it to me!! Honestly, I am not a proponent of vaccines. I am just a mature old growth hippie, I kept my son unvaccinated-and he has never had an illness that a vaccine would have prevented. BUT, I admit that the prospect of another bout with these shingles has me looking into the vaccine. Since this evil little virus NEVER leaves your body (how rude is that?) the vaccine can be useful even after you have had an outbreak. It is a fairly new vaccine, and I recommend you discuss it with your doctor. One can never have too much information.

Turns out,  that I won't be having the vaccine, I am allergic to one of the components. So, I will just be hoping that my body will not need new roofing materials anytime soon. Believe me, I will never look Up On The Housetop again without thinking about the shingles!